Archive for the 'Families' Category

Students with EBD Hit Hardest by Texas Cap in Special Ed Enrollment

According to reports Brian M. Rosenthal published in the Houston (TX, US) Chronicle, since the early 2000s when the Texas Education Agency (TEA) essentially limited enrollment in special education to 8.5% of the school population, the category of students with disabilities that saw the largest decline in enrollment was emotional disturbance.

Mr. Rosenthal published a series of articles reporting his investigation of systematic denial of services to students with disabilities in Texas beginning in September 2016. The TEA created a system for rating local education agencies’ special education programs that included a benchmark for how many students should be be enrolled. In an installment published 19 November 2016 and entitled “Mentally ill lose out as special ed declines,” he begins the report with the story of Alston Jeffus, an adolescent who is on his way home after spending months in a state hospital. Here are a few paragraphs from Mr. Rosenthal’s article:

The Texas Education Agency’s decision to set an 8.5 percent target for special education enrollment has led schools to cut services for children with all types of disabilities, but mentally ill students like Alston have been disproportionately affected, the Houston Chronicle has found.

Federal law requires schools to provide counseling, therapy, protection from discipline and other support to children with “emotional disturbances,” including severe anxiety, depression, bipolar disorder and post-traumatic stress disorder. Today, however, Texas schools serve 42 percent fewer of those students, relative to overall enrollment, than when the TEA set the benchmark in 2004.

It is a bigger drop than has occurred in almost any other disability category.

In all, an estimated 500,000 school-age children in Texas have a serious mental illness that interferes with their functioning in family, school or community activities, according to the state Health and Human Services Commission.

Only 30,034 receive special education services.

There is a lot more to this story (subscription may be required). I recommend it to readers. Also, I encourage readers haven’t been following Mr. Rosenthal’s excellent reporting on this matter to catch up; the Chronicle published a guide to the series.

Mr. Kinsey was not the target: Better or worse?

According to John Rivera, the head of Police Benevolent Association of Dade County (FL, US), the bullet that struck Mr. Charles Kinsey on Monday 18 July 2016 (while Mr. Kinsey was working to return a young man with Autism to the young man’s nearby group living facility) was not aimed at Mr. Kinsey. The officer was firing at the young man with Autism.

According to reporters for the Miami (FL, US) Herald, Mr Rivera apparently was concerned that people in the public were contextualizing the shooting as an exemplar of police conflict with African-Americans. Mr. Kinsey is Black. The Herald reporters, Alex Harris, David Ovalle, and Charles Rabin, reported that people protested the shooting at a Miami police station.

The shooting of Kinsey and the video that accompanied the stories caused an uproar. Thursday night about 40 Black Lives Matter protestors stormed into the North Miami police department demanding that the officer who shot Kinsey be fired.

For his part, Mr. Rivera expressed concern about misinformation fueling the community protest.

“I couldn’t allow this to continue for the community’s sake,” Rivera said Thursday during a hastily called press conference at the union’s Doral office. “Folks, this is not what the rest of the nation is going through.”

So, we have an apparent conflict between two communities that are concerned about the use of force against members of their respective communities. I agree with them both. Fewer shots. More calm talk. Understand Autism.

U.S. Congresswoman Frederica Wilson of Miami Gardens visited North Miami Thursday and made a brief statement saying, “We’re all in shock today,” and calling for officers to be trained in dealing with autism and mental-health issues.

Rivera said it wasn’t clear Thursday if the officer who fired his weapon had undergone Crisis Intervention Training. The session is required in many departments when an officer joins and is urged as a refresher in ensuing years. It is not required in North Miami.

Thank you, Representative Wilson!

Sources:

A parent’s perspective on autism

Katherine Osnos Sanford, who blogs at KatherineSanford.com, published an article in the Washington Post 26 April 2016 under the headline, “Want to know what it’s really like to have a child with autism?” that provides an insightful glimpse into some of the thoughts of parents of young children with autism. In just over 1100 words, Ms. Sanford captures a lot. There’s Saturday morning errands, education issues, considerations about the future, and family visits with neighbors.

There’re also challenges. Dressing an eight-year old who uses diapers. Contending with a meltdown in a public place.

My husband and I are at our local garden store, running errands on a typical Saturday, when Mae, our 8-year-old, becomes agitated. She quickly goes from bunny-hopping down the Azalea aisle — smile on her face, dimples on display — to growing fidgety and vaguely cranky to screaming and hitting herself. The sound is horrifying. Heads turn toward us.

Mae is wearing a bathing suit under her leggings, not because we have plans to go to the pool but because she still wears diapers and recently developed a habit of removing them — spandex and complicated straps slow her down. In this moment, she’s got rock-star hair: What’s usually a neat black pageboy is sticking up four inches, thanks to the way she compulsively rotates her head back and forth in bed as she falls asleep. Her beautiful long eyelashes now are plastered together with inconsolable tears — trying to intervene only ever makes it worse.

I don’t want to foist this on other people, and I want to protect my daughter. So I scoop her up — for now, at 48 pounds, she’s still light enough to carry — and take her back to the car, where I can strap her into her car seat, keep her from hurting herself and limit the sensory assault on her brain.

It occurs to me that it’s Autism Awareness month, and we’ve just hosted our own autism awareness event at the store.

Go read the entire article.

Depression, suicide, choice, and our kids

In a wrenching obituary and follow-up articles, Eleni Pinnow courageously recounts her sister’s suicide following bouts of depression. Ms. Pinnow wrote, “Aletha Meyer Pinnow, 31, of Duluth (formerly of Oswego and Chicago, IL) died from depression and suicide on February 20, 2016.”

I know that most readers of EBD Blog are looking for content regarding children and youths. At 31, Aletha Pinnow was not a child nor a youth, but she had been, and we can bet that her depression was not a recent development. The reports I’ve seen do not make clear that she had a life-long condition, but it would not surprise me.

The obituary does have a special twist, though:

Aletha found her true passion in fifth grade when she decided to become a special education teacher. She graduated high school a year early to enroll in her future alma mater, Northern Illinois University (NIU), in anticipation of that goal. It is the ultimate understatement to say that Aletha loved working with people with disabilities (especially people on the autism spectrum). She was a special education teacher for over a decade and she was, as she was happy to tell you, awesome at it. She saw the potential and value of every single one of her students and she loved them with a ferocity that would make a rabid mother bear quiver.

One can learn more about Aletha in what I think is the original obituary, and a follow-up from the Washington Post.

Is suicide a “choice?” I’m not so sure. I suspect environmental conditions compel people to kill themselves. We need to understand that phenomenon better. Because suicide is not a repeatable behavior, it is impossible to complete a behavioral analysis of it. This presents a substantial problem. That does not authorize us to go off willy-nilly, spouting untestable hypotheses. The topic needs to be examined systematically.

But, importantly, as Eleni Pinnow has done, it must come out of the shadows. We can’t hide this. Especially when we see depression in children and youths. The risk is too great that that subsequently there will be substantial problems.

Matt Brodhead on halting the spread of FC

While we’re on the topic of facilitated communication (FC or “supported typing” or “rapid prompting”), readers might want to watch a TEDx presentation by Professor Matt Brodhead. As though familiar with TED talks know, this is brief presentation and in it Professor Brodhead focuses squarely on a clear presentation about FC: “We must stop this now.”

Facilitated Communication and its tentacles examined

Slate medical reporter David Auerbach published a thorough examination of the short-comings of facilitated communication in an article entitled “Facilitated Communication Is a Cult That Won’t Die.” His analysis is too long to summarize here. Readers should read it themselves. Suffice it say that he calls into question not just the practice of FC, but lots more, including funding of FC efforts by the US Department of Education and support of the SWIFT program.

Although Mr. Auerbach’s article mentions a post on our sibling blog, SpedPro, he did not catch the many mentions about FC here on EBDBlog. That’s OK. They are still here!

Georgia students with EBD unnecessarily segregated and denied equal services

On 15 July 2015, The Civil Rights Division of the U.S. Department of Justice declared that the U.S. state of Georgia had been illegally segregating students with behavior disorders from their peers and failing to provide them with appropriate educational services. The case arises because of a public system in Georgia called the Georgia Network for Educational and Therapeutic Support (GNETS) Program, a statewide system of services designed for students with emotional or behavioral health needs that began in the 1970s and today serves approximately 5000 students.

According to a letter sent to Georgia Gov. Nathan Deal and Attorney Gen. Sam Olens, Georgia

in its operation and administration of the GNETS Program, violates Title II of the ADA by unnecessarily segregating students with disabilities from their peers. In addition, the GNETS Program provides opportunities to its students that are unequal to those provided to students throughout the State who are not in the GNETS Program.

Continue reading ‘Georgia students with EBD unnecessarily segregated and denied equal services’

Children with Autism in public businesses: A mother’s wishes.

Lauren Swick Jordan blogs at “Lauren-I Don’t Have a Job” about her stay-at-home life (job?) raising two sons, one of whom has Autism. Drawing on news about an airline flight being diverted to remove a family with a child with who has Autism, Ms. Jordan reworked one of her posts into an article that appeared in the Washington (DC, US) Post:

There has been a big story in the news recently about a family being kicked off of a United Airlines plane due to a fear that the daughter with autism mom would disrupt the flight. According to reports, the non-verbal daughter was in the early stages of feeling hungry, and her mom knew she needed to eat to avoid a meltdown. But the only warm food on the plane was for the first class passengers. The mom pleaded with the flight attendant, explained her daughter had special needs, and offered to pay extra for the food. Finally the flight attendant accommodated the family only after the mother explained that if she didn’t eat, “she’ll be crying and trying to scratch in frustration. I don’t want her to get to that point.” The family received the food and the mom and daughter settled in for their flight. All was well.

Here is where that story should have ended.

Instead, the flight attendant told the plane captain, who decided to make an emergency landing and have police escort the family, complete with a calm daughter, off of the plane.

Please read Ms. Jordan’s full story, Here’s the right way to treat a kid with autism (United Airlines, take note) from the Post. See her original post here.