Archive for the 'Families' Category

Page 5 of 16

Systems of care for ADHD

Children and youths with ADHD and their families ought to know about systems of care. Systems of care are networks of services that are coordinated across different agencies and groups within the community. A system of care focuses on the needs of individuals and should be designed so that it takes advantage of that person’s strengths (i.e., is “strengths based”) and unique characteristics (e.g., ethnic background and native language).

Systems of care have been studied extensively in the disciplines focused on Emotional and Behavioral Disorders. They are not just for kids “lost to the streets.” The coordination of services can be beneficial for individuals with ADHD, too.

Learn more about ADHD and systems of care from the SAMHSA, the US Substance Abuse and Mental Health Services Administration. Download a PDF.

Sphere: Related Content

Consumer Watchdog on Autism therapy insurance

On behalf of the families of two children with Autism, a consumer advocacy groups claims that regulators in California (US) are allowing insurers to deny access to needed therapy. Consumer Watchdog seeks to require the Department of Managed Health Care to mandate that insurers pay for treatment based on applied behavior analysis for children with Autism.


KABC LA coverage

On the heels of the recent agreement in Michigan (US), I have to wonder whether advocates for children with Autism are seeing the beginning of a wave of changes in insurance support for early and intensive behavioral treatment of Autism.

Consumer Watchdog, which was previously known as “Foundation for Taxpayer and Consumer Rights,” has a pretty broad agenda. In addition to insurance issues, it addresses patients’ rights, political corruption, corporate excesses, and other topics. Consumer Watchdog’s site has links to multiple items regarding Autism.

Also see coverage by Lisa Girion of the Los Angeles Times: “Autism patients’ treatment is denied illegally, group says“; Ms. Girion covered this topic previously (see 10 Mar 2009). For other earlier posts on EBD Blog about insurance coverage for children with Autism, see 25 Jun 2009 and 20 Sep 2008.

Sphere: Related Content

Jani illustrates troubles

Shari Roan’s article entitled “Jani’s at the mercy of her mind” illustrates the difficulties encountered by children with schizophrenia and their families. For those who do not know about schizophrenia in children, this journalistic case study will be a good introduction.

It’s been a rough week. A few days ago, at UCLA’s Resnick Neuropsychiatric Hospital, 6-year-old Jani toppled a food cart and was confined to her room. She slammed her head against the floor, opening a bloody cut that sent her into hysterics. Later, she kicked the hospital therapy dog.

Jani normally likes animals. But most of her animal friends — cats, rats, dogs and birds — are phantoms that only she can see. January Schofield has schizophrenia. Potent psychiatric drugs — in doses that would stagger most adults — seem to skip off her. She is among the rarest of the rare: a child seemingly born mentally ill.

Here’s a video segment (7:45) from the story; it’s by Don Kelsen and Tim French.

 

Link to Ms. Roan’s article. For other resources about childhood schizophrenia, see these links:

Sphere: Related Content

Familiar concerns?

Summer in the US finds children and youths out of school and, perhaps, less vulnerable to some of the problems that are associated with the social and academic demands that are part of schooling. As a result, perhaps fewer of the familiar problems illustrated in this poster are apparent during summer.

If summer seems like a relief from such problems, though, that could be an important indicator that those very problems need to be addressed. A few weeks away from school probably will not cure them. Those same difficulties may still be occurring, just less obviously, and they are likely to recur soon.

Individuals or the families of children who experience the kinds of problems noted in the poster should consult the resources available from the US government’s Substance Abuse and Mental Health Services Administration. One will not find easy cures there, but by carefully perusing the resources available one can learn what signs to monitor and where to go to get help.

The image is hot. Click it to get to a good starting place.

Sphere: Related Content

Autism and insurance in MI

In the US state of Michigan, a major health insurance provider will now reimburse families for the cost of providing therapy for children with autism. The case, Johns v. Blue Cross Blue Shield of Michigan, arose because Blue-Cross-Blue-Shield denied payment for behavioral treatment often called “ABA” to the family of a child with Autism. The case was settled in favor of the family last week.

Represented by Gerard Mantese, Mr. Christopher Johns alleged that the insurer should pay for the therapy for his son under the provisions of the policy. The insurance company refused and Mr. Johns sued. During depositions, Mr. Mantese and others on the Mr. Johns’ legal team learned of a draft memorandum identifying the behavioral therapy as effective and that a representative of the insurer would probably elect the behavioral therapy if that representative had a child with Autism.

Because Mr. Johns’ complaint was part of a class action suit, many other families will also benefit from the settlement. In an independent analysis of the case, Tresa Baldas discussed the implications.

The $1 million class action settlement from Blue Cross Blue Shield of Michigan comes amid a legislative wave in which a growing number of a states are passing laws that require insurance companies to pay for autism treatments and screenings. To date, 13 states have such laws, the most recent being Connecticut, Colorado and Nevada. New Jersey is currently considering an autism bill, and Pennsylvania’s law goes into effect July 1.

The June 17 Michigan settlement, meanwhile, has autism advocates hopeful that insurance companies will stop claiming that behavioral therapy for autistic children is experimental, and start paying for it.

“It is a significant victory for the families, obviously, and it marks a trend, hopefully, that insurance companies will start to look at autism treatment differently,” said Areva Martin, an attorney at Los Angeles-based Martin & Martin who is currently handling about 30 autism cases. She believes the labeling of autism treatments as experimental is “absurd.”

I wonder what this will mean for the California rules that do not expressly exclude behavioral therapies, but set requirements for deciding whether they are reimbursable (see my earlier post on that story).

Link for a quasi-news article about the settlement. Read another of the law firm’s press releases. Here’s link to Ms. Baldas’ analysis of the case.

Sphere: Related Content

Healthy youth

Even though many schools in the US have closed for the summer or are about to do so, I want to remind folks that this is not a good time to take a break from considering the mental health needs of children and youth. Although they are likely to wax and wane over time, mental health problems don’t take many vacations.

Learn more about US resources for individual children and youths who have emotional and behavioral disorders by surfing the rich resources assembled by the Substance Abuse and Mental Health Services Administration (SAMSHA) of the US Department of Health and Human Services. Although some of the materials may be a tad out of date (e.g., prevalence figures have been updated for some disorders such as Autism), there are still plenty of valuable materials available from SAMHSA.

Go there! Compare what you see learn there with what’s available at other trustworthy sites. Learn what to do and from whom help is available.

Sphere: Related Content

Sleep predictors of later depression

Adolescents who are at risk for later episodes of major depressive disorders differ from their peers who are not at risk on multiple measures of rapid eye movement (REM) and hypothalamic-pituitary-adrenal (HPA) activity during sleep, according to a study by Uma Rao and colleagues that appeared this fall in Neuropsychopharmacology . Early depressive episodes that occur during adolescence are strongly associated with other later problems in other areas such as interpersonal relationships, pregnancy, educational attainment, employment, and suicidal behavior; finding predictors of later problems is important for primary and secondary prevention.

Rao and colleagues compared youths at risk for major depressive disorder with peers using electroencephalographic (EEG) and HPA measures. They then followed the youths for 5 years and correlated their EEG and HPA measures with the chances of later episodes of depression. Here’s the abstract:
Continue reading ‘Sleep predictors of later depression’

Sphere: Related Content

CCBD on seclusion and restraint

The Council for Children with Behavior Disorders (CCBD), an international group concerned about children and youths with EBD, published statements about the use of seclusion and restraint with students. Although the documents appear to be in preliminary form, they began circulating on the Internet today, so I’m posting copies of the PDFs here. Watch for an update of them.

Link to the CCBD Web site.

Sphere: Related Content

Officer training for handling incidents

Reporting on US National Public Radio’s Morning Edition, Joanne Silberner presented a story about police officers handling incidents in which they encounter people with emotional and behavior disorders who are behaving in ways that appear threatening to the officers. Although her story uses adult cases for illustrations, this topic should also be of interest for youths who have EBD and for the families of children with EBD.

Here’s an excerpt from Ms. Silberner’s report.

It’s a situation no one wants to see: An armed police officer is called because someone is in the throes of a psychotic episode. “How the officer handles that situation can have a significant impact,” says Russell Laine, head of the International Association of Chiefs of Police.
Continue reading ‘Officer training for handling incidents’

Sphere: Related Content

ICDR priorities voting ends soon

As noted here earlier, people have a chance to influence future priorities for research about disabilities. It’s an opportunity for families to affect policies and shouldn’t be missed. Here’s a reminder that the time for public voting on the importance of the priorities ends tomorrow (15 May 2009).

The federally mandated Interagency Committee on Disability Research (ICDR) utilized a Web-based approach to collect online disability research comments to assist in developing a federal disability and rehabilitation 2010 research agenda. The comments were submitted from March 27th until April 17th. Additionally, registered participants were invited to review all research related comments submitted and to vote on their top 10 concerns in each topic area from April 22nd through April 29th.

As we indicated previously, the voting was suspended on April 23 to modify the database application due to the overwhelming number of recommendations. If you voted previously, it will be necessary to recast your votes during the new one-week timeframe: May 8-15, 2009. We apologize for this inconvenience and encourage you to return to the site to vote for your research priorities. For more information, please visit www.icdr.us/stakeholders.

Similar content also appears on LD Blog. Please share the word.

Sphere: Related Content

Chromosome 5 and Autism

Important studies of humans’ genes conducted by a team led by Hakon Hakonarson and Gerard Schellenberg have revealed that individuals with Autism are substantially more likely to have different genetic structures at specific areas on chromosomes than individuals who do not have Autism. Although previous studies of the human genome in Autism had yielded differences of substantial scientific interest, the differences often only accounted for a small percentage of the populations; instead of fewer than 1-3%, these differences may be present in ~15% of cases.

A research team has connected more of the intricate pieces of the autism puzzle, with two studies that identify genes with important contributions to the disorder. One study pinpoints a gene region that may account for as many as 15 percent of autism cases, while another study identifies missing or duplicated stretches of DNA along two crucial gene pathways. Significantly, both studies detected genes implicated in the development of brain circuitry in early childhood.

“Because other autism researchers have made intriguing suggestions that autism arises from abnormal connections among brain cells during early development, it is very compelling to find evidence that mutations in genes involved in brain interconnections increase a child’s risk of autism,” said study leader Hakon Hakonarson, M.D., Ph.D., director of the Center for Applied Genomics at The Children’s Hospital of Philadelphia.

Both studies link material on chromosome 5 with Autism. The research implicates genetic material near locations known as the cadherins (particularly cadherin 10 cadherin 9), neurexins, and ubiquitins. Genetic material in this area affects the creation and eliminate of molecules responsible for adhesion between cells. Neuronal cell-adhesion molecules are important because they affect communication from one nerve cell to neighboring nerve cells.

PDFs of the two studies, “Common genetic variants on 5p14.1
associate with autism spectrum disorders
” and “Autism genome-wide copy number variation reveals ubiquitin and neuronal genes,” are available from Nature. Because I’m not a student of genetics, I’d welcome comments from people who actually know this research area and can explain the concepts and mechanisms.

Read the press release from the The Children’s Hospital of Philadelphia (PA; US); that’s the source of my quotation. Also see coverage by Tina Hesman Seay of Science News, Tina Tsouderos of the Tribune.com carried in the Los Angeles Times.

Sphere: Related Content

Remembering seclusion and restraint

Over on her Ed Week blog, Christina Samuels posted an entry entitled, “Use of Seclusion, Restraints on Students at Issue: Watchdog agency preparing report on practices.” She reports not only about current efforts to keep awareness of the issue high, but also about the sometimes-tragic background on the issue.

In my view, paddling and spanking should also be on the list. These are not appropriate, let alone effective, methods.

Because students with Emotional and Behavioral Disorders are probably more likely to experience seclusion and restraint, it is important for the special education and mental health communities to help in sustaining awareness of the issue.

Read Ms. Samuels’ post.

Sphere: Related Content




Bad Behavior has blocked 823 access attempts in the last 7 days.