Archive for the 'Policy' Category

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What do educators need to know?

I’m asking readers of EBD Blog to help me identify important research questions about interventions for students with Emotional and Behavioral Disorders. As I noted in a parallel post on LD Blog, these need to be BIG IDEA questions. What do teachers and parents need to know about how to help students with EBD?

Examples (just for provoking discussion): Continue reading ‘What do educators need to know?’

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ABAI on restraint and seclusion

Based on the work of a task force composed of highly qualified individuals, the Association for Behavior Analysis International (ABAI) has issued position statement about the use of restraint and seclusion in treatment. Members of the task force, which was appointed by the executive board, include Jon S. Bailey, Michael F. Dorsey, Louis P. Hagopian, Gregory P. Hanley, David B. Lennox, Mary M. Riordan, Scott Spreat, and Timothy R. Vollmer (chair).

The Association for Behavior Analysis International (ABAI) and its members strongly oppose the inappropriate and/or unnecessary use of seclusion, restraint, or other intrusive interventions. Although many persons with severe behavior problems can be effectively treated without the use of any restrictive interventions, restraint may be necessary on some rare occasions with meticulous clinical oversight and controls. In addition, a carefully planned and monitored use of timeout from reinforcement can be acceptable under restricted circumstances. Seclusion is sometimes necessary or needed, but behavior analysts would support only the most highly monitored and ethical practices associated with such use, to be detailed below.

In the “below,” the document goes on to present in detail the a set of guiding principles and specific recommendations about the use of seclusion and restraint. Read the statement, “ABAI Statement on Restraint and Seculsion” from the ABAI Website.

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Carter talks sense

I rarely point to posts on the Huffington Posts, but an entry by Liane Kupferberg Carter entitled “Autism: A time for civility” deserves recognition. Ms. Carter, the mother of a child with Autism, notes how factionation (if I may create than word) among people with interests in Autism has created divides not needed. The basic notion is that in contemporary diagnoses, Autism reflects a diverse spectrum of disorders. Educators, parents, policy-makers, and others need to accept the diversity and not fight among ourselves. Ms. Carter makes this point well. I encourage readers to read her post.

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Virginia Autism insurance mandate gains traction

In the Virginia (US) legislature (which I sometimes call the “House of Burgess” for fun), efforts to mandate coverage of intensive behavioral therapy (AKA “ABA,” “discrete-trial training,” etc.) by insurance policies gained a little momentum 16 February when Senate Bill 464 passed by a nearly 2-to-1, bi-partisan margin. Earlier this legislative session, one similar bill (HB 303) was rejected by a narrow vote (4-to-4) in the committee on Commerce and Labor of the Virginia House but another (HB 34) may still be alive (I’m too uniformed about legislative processes to know).

The summary of the just-passed Senate bill, whose chief patron is Senator Janet D. Howell of Reston (VA, US), is as follows: Continue reading ‘Virginia Autism insurance mandate gains traction’

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US legislator about seclusion and restraint

As the US House of Representatives prepares to make statements about and amend HR 4247, Representative Joe Courtney (CN, US) posted a statement on the blog maintained by the House committee that will debate the legislation. The post, “Rep. Joe Courtney: Congress Must Make Schools Safe Havens for Children,” touts Representative Courtney’s perspective on the legislation. There’s lots more about the proposed legislation via that blog and related resources. Take a look.

Also, read the actual proposed legislation, “Preventing Harmful Restraint and Seclusion in Schools Act” and the position statements by the Council for Children with Behavior Disorders about seclusion and restraint and “Position Summary on Restraint and Seclusion.”

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US legislators consider law for preventing abusive restraint and seclusion

The US Congress is considering legislation to prevent abusive restraint and seclusion of students in schools. This is a welcome consequence of the highly visible reports about terrible abuses of students’ right to be free from harm. However, as much as I support this initiative, it is important to make clear that the laws (and regulations resulting from them) must be crafted carefully.

Here’s some text from the press efforts by the US House of Representatives about this important legislation. I follow it with a cautious support of the law.
Continue reading ‘US legislators consider law for preventing abusive restraint and seclusion’

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UK action on children’s mental health

Lord Jones of Cheltenham, a member of the the UK Parliament, has formally asked “what measures are planned to improve services for (a) children with serious emotional disturbance, and (b) adults with mental health illnesses.” The request is in response to recent UK report, Keeping Children and Young People in Mind – Full Government Response to the CAMHS Review that, in turn (and as the title shows), was a response to the government-sponsored review of child and adolescent mental health services (CAMHS).

Keeping Children and Young People in Mind calls for a system of universal services, targeted services, and specialist services accompanied by support for them from local and national government agencies. Get a copy of Keeping children and young people in mind: the Government’s full response to the independent review of CAMHS and visit the Web site of the UK Department of Children, Schools, and Families for more about “services supporting the emotional wellbeing and mental health of children and young people.”

See the Parliamentary records for a written version of the request by Lord Jones.

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Virginia Campaign for Children’s Mental Health

Twelve key children’s services for community services boards
  1. specialized children’s emergency services;
  2. crisis stabilization;
  3. evaluations for Comprehensive Services Act services;
  4. psychiatric/medication;
  5. office-based mental health therapy;
  6. office-based substance abuse therapy;
  7. mental health case management;
  8. intellectual disabilities case management;
  9. substance abuse case management;
  10. home-based behavioral treatment and support for families;
  11. school-based day treatment; and
  12. local residential services.

Right here in my home commonwealth of Virginia last week, Mira Signe, Vicki Hardy-Murrell, John Morgan, and Margaret Nimmo Crowe explained why it is important that government and private organizations attend to and address issues in children’s mental health. By explaining that Virginia has inadequate services and that one in every five children or youths experience mental health problems at some time during their lives, they made the point that that there is a tremendous need for public focus on these issues. This was the kick-off event for the Campaign for Children’s Mental Health.

The Campaign for Children’s Mental Health is a 3-year sustained effort to make mental health services more available and accessible to Virginia children in need. It will strongly endorse Governor-elect McDonnell’s call for system improvements; urge the General Assembly and state and local government to work collaboratively with the administration to address system deficiencies; and conduct a high-profile three-year advocacy and education drive to build public and political support for improved mental health services for children.

Only about one in 20 of Virginia’s children have access to the key services listed in the accompanying box. So, four out of five children who need these services do not have access to them.

No, Virginia, this is not an acceptable way to treat our children. Let’s do better.

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ADHD and smoking and lead

In the November 2009 issue of Pediatrics, Tanya Froehlich and colleagues reported that maternal smoking during pregnancy and children’s exposure to lead were associated with diagnoses of attention-deficit hyperactivity disorder (ADHD). Each factor alone was linked to ADHD, and the two in combination had an even greater association ADHD.

OBJECTIVE: The study objective was to determine the independent and joint associations of prenatal tobacco and childhood lead exposures with attention-deficit/hyperactivity disorder (ADHD), as defined by current diagnostic criteria, in a national sample of US children.
Continue reading ‘ADHD and smoking and lead’

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FC required by law?

While we’re on the subject of ineffective interventions, I want to revisit facilitated communication (FC). The US commonwealth of Massacheusetts apparently is considering a bill that will require teachers to learn to use FC. In “An Act To Improve Augmentative And Alternative Communication Opportunities For Children With Disabilities,” the legislative houses of Massachusetts are proposing to revise regulations for licensing educators to ensure that special and general education teachers have received training in using augmentative and alternative communication procedures, including FC.

The legislation, introduced into the senate by Senator Cynthia Stone Creem of the First Middlesex and Norfolk district and into the house by Representative Garrett J. Bradley of Plymouth, provides this definition of alternative and augmentative communication:

The term “alternative and augmentative communication” shall be defined as methods of 26 communication other than oral speech that enhance or replace conventional forms of expressive 27 and receptive communication to facilitate interaction by and with persons with disabilities who 28 are nonverbal or have limited speech, including, but not limited to: specialized gestures and 29 signs; communication aids such as charts, symbol systems and language boards; mouth sticks; 30 facilitated communication; and electronic communication devices such as switches, head 31 pointers, eye tracking, dynamic displays, auditory scanning and speech synthesizers.

Although the bill was introduced in January 2009 (and apparently has been introduced in previous sessions), I can find no record of whether it has been passed. It was referred to a joint committee on education and there was a “Public Hearing date 10/20,” the legislative record shows nothing more as of the date I’m writing this. When originally introduced, it was Senate Bill 00223, but it may now be listed as Senate Bill S02692. Anyone know the status?

Flash of the electrons to Gina Green for her post APBA Sponsor, Affiliate Oppose MA Legislation Promoting Bogus Technique alerting me to this questionable legislative activity. She pointed me to an article about a hearing on the legislation; fortunately, some folks objected to including FC in the law.

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C0nc0rdance’s anti-vax takedown

An individual who goes by the screen name C0nc0rdance posted a pair of videos to YouTube on 1 October 2009 that make a clear and compelling case for ignoring ill-reasoned arguments recommending that parents avoid vaccinating their children.

When we make risky decisions about our health, it’s always good to be in possession of all the facts, to let our brains, and not our hearts, make the decision. Your child is thousands of times more likely to die from a preventable disease you didn’t vaccinate them against than to develop autism from a vaccine you did give them. The case for autism and vaccines is solely based on weak correlations and emotional responses.

Continue reading ‘C0nc0rdance’s anti-vax takedown’

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A. Duncan promotes PBIS

Arne Duncan, US Secretary of Education, wrote to the chief officers of education for each of the states in the US on 31 July 2009 regarding the use of seclusion and restraint in schools. He expressed concern about the testimony heard recently by the Education and Labor Committee of the US House of Representatives, and recommended that states adopt Positive Behavioral Interventions and Support.

My home State of Illinois has what I believe to be one good approach, including both a strong focus upon Positive Behavior Intervention and Supports (PBIS) as well as State regulations that limit the use of seclusion and restraint under most circumstances….

Several other States have also adopted effective seclusion and/or restraint policies, but there are many jurisdictions that have not, leaving students and teachers vulnerable.
Continue reading ‘A. Duncan promotes PBIS’

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