Archive for the 'Policy' Category

Page 3 of 10

Danny Watt’s story

The parents of Daniel Watt, a youth who had multiple problems, told the story of their son’s life and suicide. Tom Jackman of the Washington Post reported the story of Danny and his parents, helping explain some of the problems of addressing the needs of children with multiple diagnoses—co-morbid schizoaffective disorder and substance abuse, in Danny’s case.

Danny Watt once leapt from a moving train. He hurtled through the windshield of a rolling car. Got pummeled by drug dealers. Overdosed. Swallowed rat poison. Tried to hang himself.

In his tumultuous 21 years, Danny Watt danced with death in the most amazing, horrible ways. In the end, two college students spotted him facedown in the cold, murky water of the C&O Canal one afternoon in April 2008. The medical examiner said Danny had drowned.

Continue reading ‘Danny Watt’s story’

Sphere: Related Content

Seclusion and restraint on Parade

Parade Magazine, the insert into millions of Sunday newspapers in the US, carried a brief piece about seclusion and restraint in the versions to be delivered 26 July 2009 (available on line 25 Jul 2009). The piece doesn’t present anything new, but we can hope that it helps to sustain concern about providing appropriate treatment for individuals with disabilities.

Link to the story. Flash of the electrons to Mike Kruger of the US House of Representatives Committee on Education and Labor News of the Day: Should Schools Use Restraints on Students?. On the House Ed & Labor blog one can also see a video of Chair George Miller talking about seclusion and restraint.

For previous coverage of seclusion and restraint on EBD Blog, please use the items with that label in the “tags” section of the side rail.

Sphere: Related Content

Consumer Watchdog on Autism therapy insurance

On behalf of the families of two children with Autism, a consumer advocacy groups claims that regulators in California (US) are allowing insurers to deny access to needed therapy. Consumer Watchdog seeks to require the Department of Managed Health Care to mandate that insurers pay for treatment based on applied behavior analysis for children with Autism.


KABC LA coverage

On the heels of the recent agreement in Michigan (US), I have to wonder whether advocates for children with Autism are seeing the beginning of a wave of changes in insurance support for early and intensive behavioral treatment of Autism.

Consumer Watchdog, which was previously known as “Foundation for Taxpayer and Consumer Rights,” has a pretty broad agenda. In addition to insurance issues, it addresses patients’ rights, political corruption, corporate excesses, and other topics. Consumer Watchdog’s site has links to multiple items regarding Autism.

Also see coverage by Lisa Girion of the Los Angeles Times: “Autism patients’ treatment is denied illegally, group says“; Ms. Girion covered this topic previously (see 10 Mar 2009). For other earlier posts on EBD Blog about insurance coverage for children with Autism, see 25 Jun 2009 and 20 Sep 2008.

Sphere: Related Content

Autism and insurance in MI

In the US state of Michigan, a major health insurance provider will now reimburse families for the cost of providing therapy for children with autism. The case, Johns v. Blue Cross Blue Shield of Michigan, arose because Blue-Cross-Blue-Shield denied payment for behavioral treatment often called “ABA” to the family of a child with Autism. The case was settled in favor of the family last week.

Represented by Gerard Mantese, Mr. Christopher Johns alleged that the insurer should pay for the therapy for his son under the provisions of the policy. The insurance company refused and Mr. Johns sued. During depositions, Mr. Mantese and others on the Mr. Johns’ legal team learned of a draft memorandum identifying the behavioral therapy as effective and that a representative of the insurer would probably elect the behavioral therapy if that representative had a child with Autism.

Because Mr. Johns’ complaint was part of a class action suit, many other families will also benefit from the settlement. In an independent analysis of the case, Tresa Baldas discussed the implications.

The $1 million class action settlement from Blue Cross Blue Shield of Michigan comes amid a legislative wave in which a growing number of a states are passing laws that require insurance companies to pay for autism treatments and screenings. To date, 13 states have such laws, the most recent being Connecticut, Colorado and Nevada. New Jersey is currently considering an autism bill, and Pennsylvania’s law goes into effect July 1.

The June 17 Michigan settlement, meanwhile, has autism advocates hopeful that insurance companies will stop claiming that behavioral therapy for autistic children is experimental, and start paying for it.

“It is a significant victory for the families, obviously, and it marks a trend, hopefully, that insurance companies will start to look at autism treatment differently,” said Areva Martin, an attorney at Los Angeles-based Martin & Martin who is currently handling about 30 autism cases. She believes the labeling of autism treatments as experimental is “absurd.”

I wonder what this will mean for the California rules that do not expressly exclude behavioral therapies, but set requirements for deciding whether they are reimbursable (see my earlier post on that story).

Link for a quasi-news article about the settlement. Read another of the law firm’s press releases. Here’s link to Ms. Baldas’ analysis of the case.

Sphere: Related Content

CCBD on seclusion and restraint

The Council for Children with Behavior Disorders (CCBD), an international group concerned about children and youths with EBD, published statements about the use of seclusion and restraint with students. Although the documents appear to be in preliminary form, they began circulating on the Internet today, so I’m posting copies of the PDFs here. Watch for an update of them.

Link to the CCBD Web site.

Sphere: Related Content

Officer training for handling incidents

Reporting on US National Public Radio’s Morning Edition, Joanne Silberner presented a story about police officers handling incidents in which they encounter people with emotional and behavior disorders who are behaving in ways that appear threatening to the officers. Although her story uses adult cases for illustrations, this topic should also be of interest for youths who have EBD and for the families of children with EBD.

Here’s an excerpt from Ms. Silberner’s report.

It’s a situation no one wants to see: An armed police officer is called because someone is in the throes of a psychotic episode. “How the officer handles that situation can have a significant impact,” says Russell Laine, head of the International Association of Chiefs of Police.
Continue reading ‘Officer training for handling incidents’

Sphere: Related Content

US Congress hearings on seclusion and restraint

Over on Behavior Mod Info readers can find several entries about the hearings regarding US schools’ use of seclusion and restraint. The hearings were conducted by the US House of Representatives’ Committee on Education and Labor.

(Apologies for the cross-posting to those who read Teach Effectively.)

Sphere: Related Content

ICDR priorities voting ends soon

As noted here earlier, people have a chance to influence future priorities for research about disabilities. It’s an opportunity for families to affect policies and shouldn’t be missed. Here’s a reminder that the time for public voting on the importance of the priorities ends tomorrow (15 May 2009).

The federally mandated Interagency Committee on Disability Research (ICDR) utilized a Web-based approach to collect online disability research comments to assist in developing a federal disability and rehabilitation 2010 research agenda. The comments were submitted from March 27th until April 17th. Additionally, registered participants were invited to review all research related comments submitted and to vote on their top 10 concerns in each topic area from April 22nd through April 29th.

As we indicated previously, the voting was suspended on April 23 to modify the database application due to the overwhelming number of recommendations. If you voted previously, it will be necessary to recast your votes during the new one-week timeframe: May 8-15, 2009. We apologize for this inconvenience and encourage you to return to the site to vote for your research priorities. For more information, please visit www.icdr.us/stakeholders.

Similar content also appears on LD Blog. Please share the word.

Sphere: Related Content

Remembering seclusion and restraint

Over on her Ed Week blog, Christina Samuels posted an entry entitled, “Use of Seclusion, Restraints on Students at Issue: Watchdog agency preparing report on practices.” She reports not only about current efforts to keep awareness of the issue high, but also about the sometimes-tragic background on the issue.

In my view, paddling and spanking should also be on the list. These are not appropriate, let alone effective, methods.

Because students with Emotional and Behavioral Disorders are probably more likely to experience seclusion and restraint, it is important for the special education and mental health communities to help in sustaining awareness of the issue.

Read Ms. Samuels’ post.

Sphere: Related Content

Stanford Medicine Magazine

The spring 2009 issue of Stanford Medicine Magazine, a publication of the Stanford University School of Medicine, examines the turmoil swirling around vaccines. In “Hot Shots: Vaccines under the gun” one can read any of ten articles (not counting an introductory comment by Rosalyn Carter):

  • The demonization of immunization: Shots get the once-over
  • What is a vaccine? Immunization demystified
  • Asking How: Vaccine Side Effects Probed
  • When science gets hijacked: NBC News chief medical editor tells why she broke her silence
  • Insourced to India: A vaccine for a scourge of the developing world
  • Peet’s passion: The medical education of Amanda Peet
  • Field yields: Can genetically engineered plants provide vaccines?
  • Shoot it, don’t smoke it: An injectable tobacco-grown vaccine
  • Golden needles: Vaccines for seniors
  • Grow up: Can vaccines built for kids work in older immune systems too?

Few of the folks who ardently oppose vaccines will likely be swayed by the content provided here. However, this magazine provides an excellent broad-brush treatment of the topic for those who are curious, savvy, and vulnerable to reason.

Link to the issue on the Web. Flash of the electrons to Liz Ditz for alerting me to this excellent resource.

Sphere: Related Content

ICDR input opportunity

The Interagency Committee on Disability Research (ICDR) issued a reminder about its process for securing recommendations about priorities for about disability and rehabilitation research. Following its earlier call for recommendations, ICDR now solicits public voting about the agenda.

The ICDR Seeks Your Recommendations on Emerging Disability Research Topics

Web site provides opportunity to vote and prioritize disability issues of greatest concern

This year for the first time, the federally mandated Interagency Committee on Disability Research (ICDR) is utilizing an innovative Web-based approach to collect online disability research comments to assist in developing a federal disability and rehabilitation 2010 research agenda. This technology-driven approach gives the public a three-week timeframe from March 27th through April 17th to submit their recommendations. Additionally, registered participants will be invited to review all comments submitted and vote on their top 10 concerns in each topic area during the one-week period from April 22nd through April 29th. Public comments from stakeholders are the focal point of the disability research recommendations in the ICDR Annual Report to the President and Congress.

All disability-related research topics are welcomed, including discussion about concerns important to the veteran and military communities. The ICDR is seeking comments with special emphasis placed in the following areas:

  • Collaboration and coordination among federal agencies;
  • Health information technology and/or electronic health records;
  • Health disparities;
  • Health promotion in the workplace;
  • Employment and health; and
  • Other critical research issues.
  • Guidelines and Instructions:

  • Access the ICDR Public Comment Web site: http://www.icdr.us/stakeholders for complete instructions, guidelines, and registration.
  • If you do not have access to a computer or the Internet, you may mail your comments to ICDR c/o CESSI, 6858 Old Dominion Drive, Suite 250, McLean, VA 22101 or fax to 703-442-9015. Please follow the following instructions for written comments:
    • No longer than 250 words or 1500 characters
    • Single-spaced using 12-point font in Times New Roman
  • Key Dates:

  • Web-based Public Comments: March 27 – April 17, 2009 (3:00 P.M. EDT)
  • Written Comments: March 27 – April 17, 2009 (Must be postmarked no later than the deadline)
  • Online Public Voting: April 22 – 29, 2009 (11:59 P.M. EDT)
  • Cross-posted to-from LD Blog.

    Sphere: Related Content

    Adult stakeholders

    The US Interagency Committee on Disability Research (ICDR) is seeking citizens’ recommendations about a research agenda. Although this initiative aims at addressing issues for adults in the community, which differs from the focus of EBD Blog (educational issues related to children and youth and their families), I want to mention it here so that readers who may have interests in health, employment, and similar topics will get the news.

    This year for the first time, the federally mandated Interagency Committee on Disability Research (ICDR) is utilizing an innovative Web-based approach to collect online disability research comments to assist in developing a federal disability and rehabilitation 2010 research agenda. This technology-driven approach gives the public a three-week timeframe from March 27th through April 17th to submit their recommendations. Additionally, registered participants will be invited to review all comments submitted and vote on their top 10 concerns in each topic area during the one-week period from April 22nd through April 29th. Public comments from stakeholders are the focal point of the disability research recommendations in the ICDR Annual Report to the President and Congress.

    ICDR stakeholders page.

    Sphere: Related Content




    Bad Behavior has blocked 823 access attempts in the last 7 days.