Tag Archive for 'Parents'

Children with Autism in public businesses: A mother’s wishes.

Lauren Swick Jordan blogs at “Lauren-I Don’t Have a Job” about her stay-at-home life (job?) raising two sons, one of whom has Autism. Drawing on news about an airline flight being diverted to remove a family with a child with who has Autism, Ms. Jordan reworked one of her posts into an article that appeared in the Washington (DC, US) Post:

There has been a big story in the news recently about a family being kicked off of a United Airlines plane due to a fear that the daughter with autism mom would disrupt the flight. According to reports, the non-verbal daughter was in the early stages of feeling hungry, and her mom knew she needed to eat to avoid a meltdown. But the only warm food on the plane was for the first class passengers. The mom pleaded with the flight attendant, explained her daughter had special needs, and offered to pay extra for the food. Finally the flight attendant accommodated the family only after the mother explained that if she didn’t eat, “she’ll be crying and trying to scratch in frustration. I don’t want her to get to that point.” The family received the food and the mom and daughter settled in for their flight. All was well.

Here is where that story should have ended.

Instead, the flight attendant told the plane captain, who decided to make an emergency landing and have police escort the family, complete with a calm daughter, off of the plane.

Please read Ms. Jordan’s full story, Here’s the right way to treat a kid with autism (United Airlines, take note) from the Post. See her original post here.

Autism encounters with law enforcement

Have you ever fretted about what would happen if someone who has not learned to comply with commands encounters someone who expects immediate compliance? Suppose further that the person who relies on immediate compliance might escalate his or her demands for compliance when the other person, say a child who has behavior problems, does not immediately comply.

In a family or a classroom we might call this a “power struggle.” In the language of Patterson and his colleagues (Patterson, 1982; Patterson & Reid, 1970; Patterson, Reid, & Dishon, 1992), it’s the reciprocal escalation that forms the coercion cycle. When it occurs between an officer of the law and a child with Autism, I’d call it a recipe for disaster, even a nightmare scenario. It’s one about which I’ve written previously, more than once.

Here’s an example of that nightmare come true, as reported by Susan Ferriss of the Center for Public Integrity:

Diagnosed as autistic, the sixth-grader was being scolded for misbehavior one day and kicked a trash can at Linkhorne Middle School in Lynchburg, Virginia, in the Blue Ridge Mountains. A police officer assigned to the school witnessed the tantrum, and filed a disorderly conduct charge against the sixth grader in juvenile court.

Just weeks later, in November, Kayleb, who is African-American, disobeyed a new rule — this one just for him — that he wait while other kids left class. The principal sent the same school officer to get him.

“He grabbed me and tried to take me to the office,” said Kayleb, a small, bespectacled boy who enjoys science. “I started pushing him away. He slammed me down, and then he handcuffed me.”

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Plait on Kouric’s mea culpa

In Katie Couric Apologizes for Anti-Vax Episode, but It’s Not Enough, Phil Plait (DBA “Bad Astronomer”) explains why Ms. Couric’s mea culpa for her giving excessive credibility to the incredible, post-hoc-ergo-propter-hoc stories of parents claiming vaccinations caused problems for their children. Mr. Plait, who branches out beyond astronomy to cover scientific matters in general from time to time, comes to essentially the same conclusion as Michael Hiltzik: No matter how strong her disclaimer, and Ms. Couric’s falls a bit short of being an abject retraction, she can’t take back the effect of having provided the highly visible stage for the anti-vaccination advocates.

It’s coverage like this, the embrace of facilitated communication, and even the pervasive endorsement of learning styles that makes it hard for reason and evidence to make headway in providing services for individuals with disabilities. Those of us who champion evidence-based approaches sometimes feel like were swimming upstream in sewer.

Analyzing K. Couric’s mea culpa

In “Katie Couric backs off from her anti-vaccine show–but not enough,” Michael Hiltzik provided a sensible and nuanced analysis of Ms. Couric’s recant of her recent mistaken grant of airtime to anti-vaccination advocates. Mr. Hiltzik gives Ms. Couric credit for “fessing up” to many of the mistakes in the show but he very simply noted, “You should read [her entire Huffington Post article]. But you should know that Couric didn’t go far enough.”

After cataloging the many appropriate retractions in Ms. Couric’s mea culpa, Mr. Hiltzik explains the basic problem: People are going to remember the heart-wrenching scenes from the original broadcast, not the cool, rational explanation of the print retraction. I recommend readers review his well-reasoned and -written column.

Little Keswick to feature talk by Ross Greene

The Little Keswick Foundation for Special Education, a philanthropic group associated with the Little Keswick School in central Virginia, announced that Ross Greene, author of The Explosive Child and Lost at School, will speak at its 16th Annual Education Symposium scheduled for 10 October 2013 from 7:00 to 9:00 PM at Piedmont Virginia Community College’s V. Earl Dickinson Center. The session, entitled “Collaborative & Proactive Solutions: Understanding and Helping Behaviorally Challenging Kids (and their Caregivers),” is open to the public and there is no admission fee.

A child psychologist, Ross Greene has taught courses for the Department of Psychiatry at Harvard Medical School and the Department of Psychology at Virginia Tech. He is founder of Lives in the Balance, a non-profit devoted to explaining and supporting his theraputic approach, called “Collaborative Problem Solving.” In addition to his books, Professor Greene has published research articles in well-respected journals such as Journal of Consulting and Clinical Psychology, American Journal of Psychiatry, and Journal of Emotional and Behavioral Disorders.
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Bad Astronomy on bad TV programming

Phil Plait, who is known for his “Bad Astronomy” Web presence (and let’s not confuse that with astrology, which is bad, forsooth!), hit the Internet with a critique of Jennifer “Jenny” McCarthy’s appointment to host a television show. Over on his Slate blog, Mr. Plait (he has a Ph.D. from the university where I teach, so I could say “Dr.” but we refer to each other as “Ms.” or “Mr.” in this neighborhood) provides what I might describe as something close to a blistering indictment of the appointment:

I was hoping I wouldn’t have to write this post, but here we are: The daytime talk show The View has indeed hired Jenny McCarthy as a co-host. I wrote about this last week, alerting people to the possibility, and now it’s now been confirmed. She’ll find her spot on the program this fall.

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Vaccination “free-riders”

Over on Scientific American, Janet D. Stemwedel reprised a blog post she ran in 2009 about how people who refuse to vaccinate their children against major diseases are taking advantage of the efforts by others to protect their children and their neighbors. She refers to people who adopt this strategy as “free-riders” (and I’ll leave it up to readers to review the full discussion of the term), while making the important arguments about people considering staying out of the herd, if they’re not willing to do their part for the herd.

Read the newer version entitled “The ethics of opting out of vaccination” and the original entitled Trust and accountability in the vaccine-autism wars as well as the follow-up piece with her discussion of comments “Vaccine refuseniks are free-riders” (beware: the link to the second post that appears in the last post goes 404).

Can a child recover from Autism?

Yesterday I wrote about how, when people consider individual cases, the possibility of improvement for children with Autism might make otherwise inert therapies appear to be beneficial. In yesterday’s post I referred to research by Molly Helt and colleagues (2008) about recovery among individuals with Autism, and I hinted about an important recent study by Deborah Fein and her colleagues (2013) related to that phenomenon. Today I discuss that second study.

The more recent study is just another among many by Professor Fein, who was a principal author on the Helt et al. (2008) study, and who has been doing exemplary work about Autism and Autism Spectrum Disorders (ASD) for many years. In this one she provides new data about “recovery,” a word they rarely use in the course of their article.

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